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Ankylosing spondylitis: anyone else?
Spine Health | Last Active: Dec 1 11:25am | Replies (82)Comment receiving replies
I have had joint & muscle pain for as long as I can remember. I had neurosurgery in 1997. I had my spine fused at C5-6, my disc had ruptured and was compressing my spinal cord. I believe this is what triggered my fibromyalgia. I wasn't officially diagnosed with FM until 2001. I also was diagnosed with endometriosis, interstitial cystitis, IBS, dry eyes & mouth(possibly sjogrens syndrome) PTSD, anxiety, depression, & I have sleep issues. In december 2010 I was very sick with a respiratory virus. This triggered chronic fatigue syndrome. In august 2011 I started to have inflammation in my joints. I was tested & told it was seronegative spondyloarthropy and my rheumatologist now is saying it is probably ankylosing spondylitis. I have tried prednisone, but it only helps in high doses. Methotrexate made my hair fall out, caused severe abdominal pain & thrush & staph infections. I was also unable to stay awake. I have had 3 remicade infusions, but they haven't helped. I take vicodin & ccyclobenzaprine dailly. Im considering trying enbrel.
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Regarding ankylosis spondylitis, and psoriatic arthritis.
It sounds like you have been through a lot! I was diagnosed osteoporosis at age 46 as well as psoriasis.
Later, I was diagnosed with psoriatic arthritis and referred to rheumatology. After blood-work showed l was HLA-B27 positive and MRI was in my SI joints. I had edema with inflammation.
The rheumatologist diagnosis was ankylosing spondylitis. I too have dry eye disease, and am supposed to be using xiidra, Which I totally hate. It seems to make my eyes dryer, redder and my psoriasis flare in the corners of my eyes.
I started out on Humira, which I did not tolerate well, headaches etc not to mention lots of cancer in my family so l switched to Cosentyx. I’ve been using Cosentyx 150 ml injections one monthly for over a year and my back pain has only intensified. My rheumatologist is trying to get The pre-authorization for Taltz.
I understand it’s similar to Cosentyx, only some people don’t do well on Cosentyx can do well on Taltz.
My diagnosis has come at age 61 so I have not had proper treatment to prevent the progression of this condition. Every day is painful. I try to stretch, I try to walk, l love dancing 💃 but it hurts! I don’t understand why so painful if it’s good for you? I know it’s important to stay moving, but the pain is intense. The only pain medication I’m taking is meloxicam 15 mg. Daily.
Here’s my question, My friends are going to take golf ⛳️ 101 lessons. It’s once a week for five weeks. I don’t play golf, but I would love to know how and have the knowledge of the game. If I could Learn the basics and play for fun occasionally is this going to benefit my condition or is it going to cause further damage to my spine?
if anyone knows the answer to this question I would love some advice as lessons are supposed to start tomorrow. The other question I have…. I would like to know is how you’re doing if you’re on Taltz for ankylosing spondylitis and psoriatic arthritis.
Thank you!