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Pineal Cyst: What symptoms led to your diagnosis?

Brain Tumor | Last Active: Sep 3, 2023 | Replies (40)

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@aggiegal

Do you know what Dr in Texas? I have a Pnieal Cyst with serious imbalance issues and many of the same symptoms. I have been passed around to differnt Dr’s and have been made to feel like I’m crazy. I am in Texas and would love to get another opinion. Thanks!

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Replies to "Do you know what Dr in Texas? I have a Pnieal Cyst with serious imbalance issues..."

I don’t think my last post I tried went through so I’ll try again. As stated above/below or however it displays, make sure Vestibular and spinal and all other causes of your symptoms have been ruled out. If you are 100% completely healthy and have a pineal cyst >1.4 cm(?) it can cause symptoms, but usually has to be fairly large to be the root cause. The treatment is brain surgery and that causes a traumatic brain injury. So if everything has been ruled out and have tried all forms of conservative treatment (PT, acupuncture, diet, normalizing deficiencies (vit D, B and magnesium to name a few that can cause symptoms), exercise (directed by an MD or PT (for whatever other probs you have) and the other forms of calming the nervous system down of decreasing stress, depression and anxiety by doing mindfulness regularly, meditation regularly, possibly tai chi or yoga if able and getting good at breathing exercises and of course regulating sleep as the main function of the pineal gland is circadian rhythm and medicines to address the dysfunctions, then at that point, surgery may be right for you.
For the most part they are right in that it doesn’t usually cause these symptoms, but if you get to Paranaud syndrome then at that point I believe they’d consider surgery. Otherwise, the after effects of brain surgery are all the same symptoms. Just education is all I’m giving. It’s very scary to have these symptoms and in fortunately there are an infinite number of causes of these symptoms and so many diagnoses to rule out (some with treatment and cures and unfortunately, some like all of mine that don’t have treatment and cures).
Hope that helps. I think the doctors name is ‘king’ or something like that. I was on the pineal cyst FB support group briefly and they mentioned it. The surgery was successful for those who had 0 other health issues and the cyst was the only cause of the symptoms.

Dr. Dong Kim.