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Pineal Cyst: What symptoms led to your diagnosis?

Brain Tumor | Last Active: Oct 30 3:42pm | Replies (45)

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@elsk

Hi,
I rarely take part in these discussions but I think this is really important. I’m under the care and treatment of neurologists at major Headache Center but they never consider my pineal cyst to be the cause of my symptoms. I am lying here (which I have to do every day) because with the dizziness, fatigue and constant headaches, even sitting for long stretches is hard, let alone standing. My tinnitus is horrible, it seems to be worse the second half of the day or maybe I just notice it more in the evening. It affects my ability to concentrate. My vision sometimes is off as well, feeling pressure in the eyes and blurred vision, I just want to close my eyes to rest them.
Looking back at Jeep’s symptoms, I seem to have similarities. I am in a number of headache meds, and have even been hospitalized for my symptoms but alas they are still present, years now.

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Replies to "Hi, I rarely take part in these discussions but I think this is really important. I’m..."

Has all causes of Vestibular dysfunction and cervical spine issues been ruled out? Have you seen a PT or Vestibular PT to see if they can eliminate some of your symptoms? Some of those can be treated conservatively now. But you have to find a good therapist that does manual and Vestibular therapy where you live.