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@slballew

My 16 yr old has been diagnosed with this syndrome and docs have her on low. Diet for 4 weeks. This isn’t working. Throws up after most ensure feedings. So worried as rare and need to see how others are managing.

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Replies to "My 16 yr old has been diagnosed with this syndrome and docs have her on low...."

HI @slballew, welcome to Mayo Clinic Connect. You'll notice that I moved your message to an existing discussion about Superior Mesenteric Artery Syndrome (SMAS). I did this so that you can easily connect with other parents and patients living with SMAS, like @nbackes01 @gregh @jmmb @amyk811 @jenninaloha @carolynlivingjaks @jeffr @sharronbz and others.

If you click VIEW & REPLY you can read through the past messages of this discussion and post your questions to the group.

Is she able to keep anything down?

Hi, do you know if they have looked at her esophagus when she swolows food?
My son who is 22 was born with a problem between the spinchter and esophagus. He's had Nissan fundoliplication and Linxs magnetic bead's. He was diagnosed with SMA almost two years ago. He has a feeding tube and had DDJ surgery done back in August of 2017. Which significantly lowered his SMA pain. However, not take it away completely.
He's lost another 8 pounds in 6 months. He is 5"11 and weighs 114 .
We understand, no cure for this. Managing as best as you can.
She may need to stay away from breads, dry meats, anything too dry to be eat.
Good luck. Please let us know how she is doing.

Hello @slballew so what exactly was your daughter dx with? I can tell you no matter what eating very small meals more frequently helps some people. Don't try to eat a 'normal' size meal. Does she have MALS with compression? or nerve? Is it just SMAS? There are a lot of good groups out there to connect with and they share ideas as well. I see there are some on facebook....just an idea