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Anyone else have Superior Mesenteric Artery Syndrome (SMAS)?

Digestive Health | Last Active: Sep 29 3:11am | Replies (132)
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@colleenyoung

Hi Greg,
@hamiltl80 shares similar experiences to your daughter until she was well treated both medically and as a person at Mayo Clinic Florida. I hope she'll return to share her experiences with you.

If your daughter is Mayo Clinic patient, you can manage appointments through the patient portal. Is she registered with Patient Online Services? https://gpsnetx.mayoclinic.org/psi/content/staticpatient/showpage/patientonline

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Replies to "Hi Greg, @hamiltl80 shares similar experiences to your daughter until she was well treated both medically..."
gregh | @gregh | Dec 2, 2017

I’m not sure what her official status is. She was told a few months ago that they wouldn’t see her till she had been off pain meds for 30 days. When she was able to do that, she called back and they said ok, call the end of November for appointments in Feb. she called the end of November for her appt in February and was told February was full. Ok, she asked when can I call for March. The less than helpful person on the other end said she didn’t know and couldn’t help her. So she doesn’t have any appointments to manage. I can’t find any hardline numbers to call for assistance. Just the appointment number. And we already know that’s useless. I guess I was expecting a little more from the Mayo Clinic. Won’t let that happen again.

Have an appointment with the wonderful doctor who believed her and stuck by her till we got a diagnosis in Atlanta next week. Maybe he knows what to do....

Frustration continues to build.....

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