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@annewhit

Colleen, she is not doing very well--has been out of school for four months. Are you able to give me an idea how experienced the Mayo pediatric GI docs are with SMA?

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Replies to "Colleen, she is not doing very well--has been out of school for four months. Are you..."

Anne, I'm so sorry to hear this.
Unfortunately, I cannot answer questions about Mayo's pediatric GI docs level of experience. But here is information about the Inflammatory Bowel Disease Center for Children including contact information. http://www.mayoclinic.org/departments-centers/childrens-center/overview/specialty-groups/ibd-center-children They will be able to answer specific questions, including expertise with SMA.

@hamiltl80 speaks very highly of the care she receives at Mayo in Florida. Any insights you can give Anne when looking for an experienced specialist?