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My advice would be that fenestration is an outstanding treatment. From what I understand, the chance of re-ocurrence is low. It certainly isn't fun walking into a surgical theater for brain surgery, but I am sure glad that I did it, and would do it again. The procedure was keyhole surgery, and from my search online for videos of the procedure, it seems to involve a delicate teasing apart of tissue until the cyst is reached. I actually liked the idea of the cyst being popped ("fenestrate" means making a window in the wall of the cyst), and all the accumulated CSF being drained away. After the keyhole surgery, there is just a small indentation left on top of my head where the instrument went in. When I realized that, compared to other patients on the ward who had undergone brain tumour surgery, my scar was pretty minor and my recovery was really rapid, I felt a big sense of being very fortunate.
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Hi Kyoto, was your cyst drained completely? My fenestration was done through the third ventricule and it is draining very slowly. My symptoms are not going away as fast as I had hoped. My CT Scan after one month post surgery showed some progress, but not significantly, I will have another follow up with the neurosurgeon and CT scan 3 months post surgery. I have foggy brain and headaches and/or migraines pretty much daily and I still have paresthesia (numbness of my forehead and tingling of my scalp on and off. My vision is still blurry/double and I still have palpitations for which they have done ECG, CT scan, echocardiogram and 72 hours Holter test...which all came back normal. I did some research and I believe it is Postural Orthostatic Tachycardia Syndrome POTS) as this is happening pretty much every time I change position...my heart rate goes up 30-50 bpm when I get up in the morning, if I do laundry it goes over 160, I am not running marathon here! I have been referred in Cardiology, I hope they can do a tilt table test to confirm this but not holding my breath, as POTS is not very well known here in Canada and often misdiagnosed. As for my vision, I have been referred to an ophthalmologist but there is a 4-5 months waiting list.
Anybody in this group experiencing similar symptoms? I was wondering if acupuncture would help with the paresthesia and headache? I also did some research on low laser therapy but not sure if is safe/applicable for head/brain?