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Arachnoid Cyst

Spine Health | Last Active: Dec 9, 2023 | Replies (231)

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@lisalucier

That is rather remarkable that your memory function and IQ completely recovered after your cyst removal, @kyoto. From your experience with getting different advice from different neurologists on your case, what would you advise others to do who are wondering about potential surgery on an arachnoid cyst?

@titan26 - have you found a neurologist whom you feel listens well and has experience with arachnoid cysts?

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Replies to "That is rather remarkable that your memory function and IQ completely recovered after your cyst removal,..."

My advice would be that fenestration is an outstanding treatment. From what I understand, the chance of re-ocurrence is low. It certainly isn't fun walking into a surgical theater for brain surgery, but I am sure glad that I did it, and would do it again. The procedure was keyhole surgery, and from my search online for videos of the procedure, it seems to involve a delicate teasing apart of tissue until the cyst is reached. I actually liked the idea of the cyst being popped ("fenestrate" means making a window in the wall of the cyst), and all the accumulated CSF being drained away. After the keyhole surgery, there is just a small indentation left on top of my head where the instrument went in. When I realized that, compared to other patients on the ward who had undergone brain tumour surgery, my scar was pretty minor and my recovery was really rapid, I felt a big sense of being very fortunate.