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Hi again! Yes, I was very fortunate to be living near a university hospital with a specialist neurology department. I got re-referred after the first neurologist misadvised that the cyst can be left alone. He was young, and inexperienced, I think. My wife found the university department, and the specialists there jumped straight onto my case. My cyst was huge. I couldn't believe what I saw on the MRI. It seemed to be occupying about 1/4 or a 1/3 of the space inside my skull. My memory function and IQ was borderline mental retardation, which was also a shock. About 5 days post-surgery, that memory function/IQ had completely recovered, so to that extent, the brain can respond really well to the removal of pressure. As I mentioned, though, I was left with Transient Epileptic Amnesia. But my online reading tells that this outcome is really rare.
Has your doctor suggested the possibility of any other kind of clinical side effect from your cysts?
Replies to "Hi again! Yes, I was very fortunate to be living near a university hospital with a..."
Please advise on what university you were seen at that did surgery? Please
That is rather remarkable that your memory function and IQ completely recovered after your cyst removal, @kyoto. From your experience with getting different advice from different neurologists on your case, what would you advise others to do who are wondering about potential surgery on an arachnoid cyst?
@titan26 - have you found a neurologist whom you feel listens well and has experience with arachnoid cysts?
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Similar sounding nightmare as yours the neuroligist we saw was a resident so pretty young no experience and told us pysch would benefit. However he didn't look at the whole picture we originally went to Er due to some weird episodes where people thought I was drunk but I had not drank. Speech slured could not control body very limp and staggering real bad head pains no ability to grip. Memory issues also long term is not bad short term is horrible no appetite exhaustion dizziness
Only within last few years have the weird episodes where space out or random fall asleep started. Recently moved to altitude over 3000 ft now the suggestion is to go to lower altitude to see if it helps pressure in head. Lived in Ontario last few years and had problems on and off but not as severe as last 7 months
I am a bleeder that complicates risks in seurgery the paperwork for operation was being filled out just really wish could have a different neuroligist who knew about these things and has experience.
Also having vision problems the internal medicine dr does feel most of symptoms are related to cyst and the area they are in
Middle cranial fossa mass effect temporal lobe right side and I have to look up the left side it had a different description
So weird how it effects IQ did neuroligist do that testing for you?