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Replies to "Where did they do surgery? In ont? The most difficult problem we are having is finding..."
Spine Health | Last Active: Sep 16 3:35pm | Replies (233)
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Where did they do surgery? In ont?
The most difficult problem we are having is finding a neuroligist that will listen and that has experience with arachnoid cyst. I have two cyst on large on the right one smaller on the left. It the worry of what the brain may do after surgery will it shift won't it shift is the pressure different in the cyst then the cf fluid so many unknowns. Glad u are doing well gives hope that once this is gone memory may come back. I currently am on anti seizures meds they feel I am have non epileptic siezures or narcelipsey
Thank you for replies appreciate any info you can share such a scary spot to be in
Replies to "Where did they do surgery? In ont? The most difficult problem we are having is finding..."
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Hi again! Yes, I was very fortunate to be living near a university hospital with a specialist neurology department. I got re-referred after the first neurologist misadvised that the cyst can be left alone. He was young, and inexperienced, I think. My wife found the university department, and the specialists there jumped straight onto my case. My cyst was huge. I couldn't believe what I saw on the MRI. It seemed to be occupying about 1/4 or a 1/3 of the space inside my skull. My memory function and IQ was borderline mental retardation, which was also a shock. About 5 days post-surgery, that memory function/IQ had completely recovered, so to that extent, the brain can respond really well to the removal of pressure. As I mentioned, though, I was left with Transient Epileptic Amnesia. But my online reading tells that this outcome is really rare.
Has your doctor suggested the possibility of any other kind of clinical side effect from your cysts?