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Arachnoid Cyst

Spine Health | Last Active: Dec 9, 2023 | Replies (231)

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@titan26

Can I ask what happened after surgery? Did you have problems did you have seizures? My cyst has been with me for my life I just turned 26. Surgeon is worried about what it how brain will react or if it will move as it's been use to this thing pushing on it for so long

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Replies to "Can I ask what happened after surgery? Did you have problems did you have seizures? My..."

Hello, good to hear from you. Seizures, yes. Well, I learned the hard way that the brain is really sensitive. Who knew? Haha. Previously, I had nothing like epilepsy but the doctor speculated that the presence of the large cyst probably over time disrupted blood flow to a particular area, and that this could have been the initiator of the Transient Epileptic Amnesia that I am now stuck with. I do not collapse or pass out, or anything like that. The seizures are confined to a particular part of the brain. Fortunately, the medicine ("Vimpat") is totally effective at suppressing it; I just have to take it twice a day for ever, and it is rather pricey. But don't fret; this particular outcome is very unusual, apparently. Most cysts do not occur where mine did, in the velum interpositum. In fact, the first doctor I consulted went the standard textbook route, and said that the cyst, as is the usual case (?), can be left untreated.
My seizures only manifested as working memory failures. Long-term memory was never affected, I think. Bbut I would not be able to form new memories such as things I had been told, events that had just occurred, even significant ones such as people who had passed away. Really strange. But now, I seem to be completely restored.
I can say, at the very least, that is has been ... educational.