Connect
Comment receiving replies
Hello, I haven't posted on this page for a while. I had a surgery for an arachnoid cyst in the velum interpositum in July 2017. The recovery went well and follow-up CT scans showed the cyst had shrunk right down. At the end of 2018, I was diagnosed with associated epileptic amnesia. Vimpat seems to be controlling those symptoms really well,except for the occasional remarkable memory fail.
However, in the past few weeks, I have had some quite strong headaches. Regular pain relief medication doesn't seem to work. These headaches are not fever-related or due to tiredness. They go from my forehead to the top of my head and I get quite strong pressure in the nape of my neck. I think I had this prior to the surgery. Is it something I should be concerned about? I wonder if the hole in the cyst wall may have closed, or another cyst may have developed somehow. Is this something that happens with this condition?
Many thanks,
David
Replies to "Hello, I haven't posted on this page for a while. I had a surgery for an..."
Connect
Hi, @kyoto - good to hear from you. Glad to hear you've seen some symptom control with the vimpat for the global amnesia associated with your surgery on the arachnoid cyst.
Sounds like you are experiencing very powerful headaches, with regular (I believe you were referring to over-the-counter) pain medications not working and pain from your forehead to the top of your head with strong nape of the neck pressure.
Hoping other members like @em87 @cathyinin @qball2019 @tee9 @jseibert may have some thoughts on this with your having experienced some headache prior to surgery, now having it again, and trying to tease out what is related to the surgery. @jenniferhunter may also have some thoughts on this.