Hi @em87

I saw that you have the most recent response and that you are having surgery soon. I hope everything goes well and please update me one everything if you could.

I am 14 right now and i got diagnosed with a arachnoid cyst when I was 13. The cyst is located in between my brain and skull. I had symtoms like terrible headaches that will last days but just to come back the next day (which still go on), I would get light headed, my neck would start cramping up because of the pressure on my head, etc.

Everyday gets more torturous. Once I went to the ER for it I have had many doctor appointments every month. But, still the pain is there. They all say I’m too young to get sergury to get the tube next to my spine but I just want it to be gone so bad. It is so hard to focus in class when all I can think about is the pin point pain.

What do you guys do to deal with the pain? Is there any advise you can give me? I can not stand this anymore and I hope no one has to go through this. I hope you are doing well and your surgery goes successfully. Sending you my best wishes!

@em87 good luck to you! Did I understand that you are in Indiana? Me, too. Did you find a doctor in Indianapolis?