Hello @johnbishop, we had the appointment, but sort of disappointing. I don’t know if the doctors we saw are specialists in arachnoid cyst. They don’t feel her cyst is the cause of her headaches. Wanted us to give it a month or two. Disappointing that I doubt they would go home having pain, or have there daughter in constant pain. After leaving a few days I watched a specialist online presentation and he said if the cyst is large enough & consist headaches that get worse than it probably indicates it’s grown. Plus if imtrex or migraine meds have been tried with little relief than, it is prob cyst. I guess I expected more from Mayo Clinic. Now, list at what to do. She’s 13, and stays in room due to pain. It’s been since Jan 7th and I feel frustrated not being able to help her. She’s on amitriptyline, a preventative for migraines but no relief and we are in the 3rd week. Thanks for checking in.

Jen