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Arachnoid Cyst

Spine Health | Last Active: Sep 16 3:35pm | Replies (233)

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@susie2525

Hi i have a pineal cyst 2.2 cm round. I have same exact symptoms. Living in black and white... Apathy fatigue; numbness; memory loss...brain damage, although cyst is close to aqueduct of sylvius they say its not stopping circulation yet. I know how you feel. Dr. Minimized all my symptoms which i wrote down. Psychological and biological. Saw a cardiologist who said nothing was wrong with heart but arrhythmia. I know its the cyst. Hormone imbalances run in my family. My mother was going insane at the same age as I...early 40s after giving birth to me. My father and i took care of her i was 12. Screaming episodes, early dementia (later on); paranoia... but drs couldnt exactly pinpoint any firm diagnosis i was overseas in Europe...90's. Living like this is not life. No energy or motivation and no one to talk to that believes you. I always feared ending up like her. Never understood why she was in bed all day. Now i do. I pulled her records, and my sister also has one and am going to see a neuropsycologist and a university neurosurgeon. We all have cystic fybrosis in our ovaries, i had an hemangioma the size of a grapefruit when i was little, it was removed. They say pineal cystic tumors are not hereditary. I beg to differ. Has to be some hormonal imbalance...testosterone perhaps. I see the same symptoms ...different variations... In so many people. I hope the 2 drs i chose can help. Your case was in 2011 in Canada how did it turn out? Im starting to lose hope. And even if removed, the pineal gland goes with it. Does that mean sleep disorders; fatigue and catatonic depression will remain ? Pineal gland secretes melatonin which metabolizes into serotonin, it governs curcadian rythms amongst so many other things... Are we damed if we do damned if we dont?

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Replies to "Hi i have a pineal cyst 2.2 cm round. I have same exact symptoms. Living in..."

Hi @susie2525, I would like to add my welcome to Connect along with @ethanmcconkey and other members. It's hard to imagine how difficult it is dealing with the illness and different symptoms you have. I'm hoping you find something that helps for treatment. I found some interesting reading on Pineal Cyst disease with a lot of references and links that may be helpful.

Pineal Cyst disease: Malacards - Research Articles, Drugs, Genes ...
-- https://www.malacards.org/card/pineal_cyst

Here are a few more...

Shining new light on the pineal gland - July, 2018
-- https://www.sciencedaily.com/releases/2018/07/180705100409.htm

Clinical management of pineal cysts: a worldwide online survey - PDF
-- https://www.researchgate.net/publication/295241831_Clinical_management_of_pineal_cysts_a_worldwide_online_survey