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Arachnoid Cyst

Spine Health | Last Active: Dec 9, 2023 | Replies (231)

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@tee9

Hello All - Recently found arachnoid cyst temporal lobe. Did the MRI due to neverending headache, severe light sensitivity, face spasm, etc, etc.2 Neurologists, 2 Neurosurgeons and several medications later-everyone says cyst is not the problem, but giving no other reasonable cause. I realize others have suffered much longer than me. Had motorcycle accident 7 years ago landed on same side as my cyts...Looking for a neurologist and/or surgeon that is willing to at least try draining/opening this thing. Can anyone make any suggestions? Am in Southern California but willing to travel. At the end of my rope I cannot continue living this way -this isn't living. Thank you for taking the time to read my post.

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Replies to "Hello All - Recently found arachnoid cyst temporal lobe. Did the MRI due to neverending headache,..."

Just curious if you got any answer? We are headed to Mayo in MN for my daughter who also has arachnoid cyst. My brother had one on his spine and all symptoms that would be expected weren’t present but her had other symptoms. All
Of which disappeared once it was removed. We are struggle with doctors saying it’s not my daughters problems, but I strongly feel it is. Hope you get answers soon!! Keep pushing!!

Jennifer