Hello @em87, I am sorry to hear that you are suffering with such discomfit. Something that you wrote especially caught my attention. That was, "It seems that many neuros think that these cysts don't cause issues." That was the same experience that I had. I had a sub-arachnoid cyst, but the neurologist said that it can be left as it is. I subsequently found, in wikipedia or somewhere, that this is a general clinical position about such cysts. I was surprised because mine was huge, like yours. My wife couldn't accept this assessment, partly because I had severe memory disturbance, due to the position of my cyst. We ended up in another hospital, where the doctors quickly recommended surgery. I wasn't happy about that at first, but the surgery was successful, through a small hole in the top of my forehead. (The scar is really minimal). The change post-surgery was dramatic. And that was due to the relief of pressure the cyst was exerting. It may well be the same in your case. In any event, I urge you to keep persisting. Best wishes, David