← Return to Arachnoid Cyst

Discussion

Arachnoid Cyst

Spine Health | Last Active: Sep 16 3:35pm | Replies (233)

Comment receiving replies
@johnbishop

Hello @em87, welcome to Mayo Clinic Connect. You are already taking the first step. You are being an advocate for your own health. I would be have the same concerns as you do. You mentioned the doctors in the ER said they didn't think it was what was causing your symptoms and you have an appointment with a neurologist in January. Are you able to talk to the neurologist and possibly move up your appointment based on your latest MRI results? Also that the doctors in the ER didn't think that was causing your symptoms?

John

Jump to this post


Replies to "Hello @em87, welcome to Mayo Clinic Connect. You are already taking the first step. You are..."

I've tried moving my appointment up but they said the best they could do is put my name on the cancellation list. I've been waiting since August. The original ER doctor was concerned and at the time I had been having a headache for 8 days with no relief. He tried to transfer me out but they wouldn't accept me because I had been having headaches prior to that event so it wasn't considered acute. The neuro he consulted with didn't seem concerned and so I followed up with my regular doctor. My regular doctor set up the neuro referral and when I called to confirm my appointment they said the referral said it was for migraines and didn't even mention the cyst at all. That surprised me since it's kind of big. I'm just so tired all the time and even now have an intense headache. It seems that many neuros think that these cysts don't cause issues. I wish they could see the overwhelming amount of people who DO in fact suffer symptoms. My headaches, fatigue, and dizziness have become so bad that I am no longer working and it's really impacting my life. I just want my life back.