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Hi, @kyoto - sounds like you are experiencing many benefits of your surgery for your arachnoid cyst, including a much sharper, restored memory. It also sounds like you are having occasional periods of recurrence of symptoms. What types of symptoms have come back at times?
@matthewlucas052513 @mango - you posted previously about an arachnoid cyst. Wondering how it's going?
@husbandandwife - you mentioned a cyst that had been removed and grew back. Wondering how things have gone with that recently?
Replies to "Hi, @kyoto - sounds like you are experiencing many benefits of your surgery for your arachnoid..."
Hello All - Recently found arachnoid cyst temporal lobe. Did the MRI due to neverending headache, severe light sensitivity, face spasm, etc, etc.2 Neurologists, 2 Neurosurgeons and several medications later-everyone says cyst is not the problem, but giving no other reasonable cause. I realize others have suffered much longer than me. Had motorcycle accident 7 years ago landed on same side as my cyts...Looking for a neurologist and/or surgeon that is willing to at least try draining/opening this thing. Can anyone make any suggestions? Am in Southern California but willing to travel. At the end of my rope I cannot continue living this way -this isn't living. Thank you for taking the time to read my post.
Thank you for your enquiry, Lisa. Well, it has been quite a long journey, trying to work out what my symptoms mean. The cyst surgery in July 2017 was successful in that the confusion and headaches and working memory were cured. However, over the following, up to last month, I have had many instances of memory loss. I was even re-hospitalized for CT scans and memory testing last April. All clear.
Just in the last two weeks, Transient Epileptic Amnesia (TEA) has been diagnosed. The cause is not clear, but could be partly due to the surgery, and could also be an effect of the now resolved cyst. The doctor said that blood flow in certain areas of my brain had been affected, and from my reading it seems that one cause of TEA can be vascular insufficiency. I think that means inadequate blood flow, but I'm not sure. Anyway, for the past three weeks, I have been taking Valproate for epilepsy. The doctor says I will have to take it permanently. But I already feel a bit more stable, amnesia wise.
On the surgery consent form, one risk was listed as convulsions, so I suppose the doctor was warning me that TEA, or something similar, was a possibility. I just had no idea that epilepsy might be an outcome. Anyway, I feel much better for knowing that a cause has been identified, and that this medication is highly effectively.
Thank you for asking!
David
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I have just been diagnosed with an arachnoid cyst. I am terrified! I have had headaches, dizziness, numbness and tingling in my left arm and hand, severe fatigue (I could sleep all day), throbbing in my head and more! I had surgery years ago on my left ear for otoschlerosis and was horribly sick for weeks after from dizziness. Took half a year to overcome most of the dizziness. Not wanting to have another surgery especially on my brain. I'm getting more emotional lately and less patient with everything. Yesterday I was hot/cold all day like my internal temp control was out of wack. Had a friend die recently from a brain tumor so my anxiety level is rocketing!