We live in Ontario too..my mom who is 59, started to develop symptoms 14 months ago, of dizziness, headaches she was told vertigo. 6 months after her symptoms were alot worst, dizziness, head pain (not headache...pain she says like stabbing) pressure, balance way off, nausea. She requested a MRI at the time her doctor told her the are multiple tiny cyst in the brain nothing to worry about. That she had a very bad case of vertigo said the first neurologist. Three more months past, the 2nd neurologist said, she had a inner ear infection that is causing the vertigo, sent her for therapy....which would make her head hurt more...So I asked my mom to come stay with me in Toronto brought her to a neurologist here who did another MRI (8 month follow up) so now we are in month 14 since her symptoms started....and to add to the symptoms is...her balance is off, she can hardly walk without help as she is loosing her vision, has consent pressure in her head (like something is being pressed on), loosing her memory, if you look up symptoms she has all of them but a seizure.
Now the 3rd neurologist told her he believes she has fibromyalgia.....and put her on medication for that and said it takes a few weeks to start working, she told them she disagrees and can't understand why nobody believes these cyst causes symtpoms, she agreed to start the medication as she is wants to prove it won't help....after we started researching and found that many people across the world are experiencing the same symptoms and lack of medical care.
My mom had open head surgery at the ages of six to remove a blood clot the size of a orange, she has clips in her head....she even said nobody would beg to have their head cut open or have needles in to drain them or remove them....especially someone who has already had brain surgery and knows the recovery.....why can't somebody help her....and all you off suffering.
I am so disgusted with the medical system...and i even work in the hospital of the neurologist telling her it's fibromyalgia..
My mom has lost 14 months of her life because she can only lay down, needs help walking, showering ect.....she is missing time with her family, birthdays, Christmas,, graduations ect...
I am just watching my mom disappear.....
How can we get help......and I am loosing sleep, I just want to help her and fix her, I want my mom back, my kids want their grandma back and I want her to feel normal again, happy and active, not like she is dying. Life is so short and she lost 14 months....gown much is she going to loose before somebody will help