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Gastroparesis with severe symptoms!
Digestive Health | Last Active: Nov 30, 2023 | Replies (437)Comment receiving replies
I don't have gastroparesis but do have CIP which also has to do with slow motility of the intestines. I was diagnosed just recently and my doctor has tried a few conservative approaches which have not helped. I am on a low residue, low fiber diet and cannot eat solid food. I have been living on Boost for months. It's hard to maintain my weight or gain any. I've lost over 35 lbs. I'm also looking for some suggestions on any medications which help with the condition.
Replies to "I don't have gastroparesis but do have CIP which also has to do with slow motility..."
I haven't tried any meds yet and won't unless I get worse. You are already worse it sounds like. Reglan and domperidone are the only 2 I think. Both have the possiblity of severe side effects. The first, if I remember right, is tardive diskinesia, uncontrollable twitches or other movements. they may go away if stop meds. But not always. Same is true for many psychotrophic meds. The second med is possible to preceed a heart problem, can be very serious. In USA you have to get it from a dr. who will sign a bunch of paperwork as its experimental or somesuch designation here. Other countries its approved. Think insurance won't cover it and so it is pay out of pocket so naturally the drug companies charge a lot. Not sure price. Also read somewhere that must go in to dr. every 2 or 3 mo. the first yr. or something similar. Go to drugs.com and type them in and read prescribing information on each. Some of my spelling may be a little off.
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Elaine, I'm so sorry you haven't had better results from your Mayo visit. Wish there was something I could do. Lelia