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Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks
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I'm so sorry for your troubles. It must be awful to have to deal with all the nausea and vomiting, etc. My mom was recently diagnosed with gastroparesis after having a gastric emptying study. They said hers was "moderate" but she's been having a terrible time with it - throwing up every few days and unable to keep anything down. She's been in the ER with dehydration several times as well. She has osteoarthritis (along with a number of other medical issues). They put her on Reglan which helps with the vomiting when she can keep it down...It's been extremely difficult for her. One thing they are looking at is that she takes pain meds for her chronic pain and this may be causing the slow down in her gastric emptying. We are in the middle of all this but just wanted you to know you are not alone and I hope you are able to come to a satisfactory solution - it is a really difficult situation - best of luck!
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2 ReactionsI am sorry to hear what you are going thru. I actually just got back home from the Mayo Clinic in Rochester for Stomach issues. Mine are not nearly as bad of symptoms you are having. I have been to Johns Hopkins and UPenn and I will tell you that the Drs at Mayo were excellent. I was there for 7 days and went thru extensive tests. I was finally diagnosed with Gastrointestinal Motility / Gastroparesis. I met with the dietician today before I caught my flight home so I can modify my dirt to five small meals and still get the required nutrients. Good luck
Hi had a severe case as well. extented stomach severe acid stomach. I gave up all gluten and dairy products and all my symptoms went away . it was a miracle.
Try Align. You can get it at Sam's or Cosco. It's a probiotic. I have Gastroparesis as well and though it hasn't healed me, I can truly tell a difference. A doctor at Mayo in Arizona told me about it. Also, suck on peppermint candies. That helps me tremendously with nausea. Zofran has not helped me at all. You are not alone.
My 23 year old daughter was just diagnose with gastroparesis last week. She is always in pain. She's got the worst case. She cannot eat because it hurts to bad, so she drink about four to five bottles of boost a day for nutrition. I want her to be seen at MAYO clinic In Florida, but medical insurance say she has to be referred. Dr seem like he want to do it on his own, but I want her to be seen by a specialist. My daughter is tired of hurting 24-7 not being able to sleep. What kind of med do you take for this problem. Is there anything else I need to know about this. Will she be able to eat again. Please someone help me!!!!!
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1 ReactionI am 46 and was diagnosed last year with Gastroparesis. I am still searching for a treatment that will work for me. Your daughter needs to see a specialist. I am currently seeing a specialist in Ann Arbor and he is much more familiar with this condition that the doctors in my local community. Praying for your daughter.
Thank you. This Dr. Put her on azithromycin to help her stomach empty faster but have not been taking it long enough to see a difference. She cried after she read that its not curable. She take liquid roxicet for pain from a pain clinic. She said she don't want to take pain meds for the rest of her life. Is there anything else out there I can do, her case is severe probably cause it took so long to find out.
From what I have read the severity of the symptoms is not directly related to the emptying time. This is the case for me...my emptying time is mildly delayed but my nausea is constant. I have tried many medications none of which have worked so far but I am not giving up. Currently I am taking Domperidone (although prescribed it is not FDA approved and it has to be ordered from another country or made at a compounding pharmacy). Botox injections are sometimes an option. There is a yahoo group for people with gastroparesis that has alot of good info and also this website G-PACT.org.
Thanks. I am in the g- pact group. She's not on anything for nausea cause nothing help. She said it just come up without being nauseous. I hope someone come up with somethimg to help everyone with this problem. I am praying for all who has it and other problems. Just keep the faith and things will get better.
Somtimes I think about writing Dr Phil to see if he know where we can find solutions. Just a thought.