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paarak (@paarak)

Gastroparesis with severe symptoms!

Digestive Health | Last Active: Jun 25 11:08am | Replies (305)

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@limecat

My neurologist prescribes 250 mg of Erythromycin to be taken 3x a day (total 750mg daily) to help control symptoms, and it works. Does not fix the problem, but without the Erythromycin I have the severe nausea, vomiting, bloating, and cramping but when I take the Erythromycin and eat small, carefully selected meals, I find that between the two it’s much easier to control and sometimes I have days where I have no nausea at all. My delayed emptying problems are due to neurologic disease, so I don’t know if this will help you or not, but I hope it does. I second Jane’s comment—you are not alone. Sending well wishes, always.

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I should add this neurologist is at Shands Neuroscience Institute in Jacksonville, FL. I have had good luck at Shands (several different depts) so far. Been there for years now. I have also been to Mayo Jacksonville and they confirmed the Erythromycin treatment. When I told my gp of the treatment, his response was: ‘Really? It [the Erythromycin] works for delayed gastric emptying? I didn’t know that.’ Scary, but my point is one of the specialized centers like Shands, Mayo, Johns Hopkins, etc. should pick up on it right away.