My 25 year old daughter was diagnosed with what they think is lupus, high ANA tests, but they "can't be sure." They think it is some type of auto-immune disease. She is on high doses of steroids, and had tapered off to a low dose, then a week or so ago, she developed a full-body lesionar rash. Steroids aren't working for it, and doctors are not sure what to do. She has gone to a rheumatologist, dermatologist, etc. She is in Taiwan. I would be interested in hearing what type of symptoms you have, what medicine(s) they are using to treat it, and any other "strange" symptoms you have. Also, what tests they used to diagnose it. If you don't mind sharing, I would love to hear from you. Also, I wish you the best of luck. My sister gave my daughter a book about living with lupus titled, "You Don't Have to be Healthy to be Happy." Was encouraging to my daughter. 🙂