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← Return to Undiagnosed Hip Pain
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Bones, Joints & Muscles | Last Active: Mar 25 1:59pm | Replies (34)
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I saw two Rheumatologist Spring-Fall last yr. He was convinced with constant exercise and a proper sleep pattern I would get better. The medications they put me on originally changed me into a whole different person. I was forgetting things more than a 23 year old should it was scary. I had to taper off those medications. It has been a year now and still no answers. I recently tried Neurotin and Celebrex and those did not work but no other pain meds. One of my best friends has Ehlers-Danlos it is awful she has severe shoulder issues and every time she has surgeries they do not help
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Ehleurs Danlos has been my life companion. After my second child (another story), I was diagnosed by an old country doctor and later by a geneticist. Many doctors use it to explain whatever they do not understand as it is a very wide reaching syndrome as connective tissues affects the whole body. Mine includes the absorption of calcium resulting in total hip replacements the revisions with titanium infused with calcium as EDS prevents my bones absorbing ÇA . Just to show that patients and doctors must think outside the box. No two patients are the same. It is passed through the female line and is of Northern European origin. Males are usually carriers females are the main recipients especially due to childbirth. Bottom line is to your own research and analyze your case well should you be a carrier. And, sorry to say, it gets worse with age (am almost 80) and you must listen to it.
Bonne chance!!