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Undiagnosed Hip Pain

Bones, Joints & Muscles | Last Active: Mar 25 1:59pm | Replies (34)

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@zildjiangirl

I was reading your post assuming you were older and then I got to the point that you're 23 and felt instantly connected to you.

I'm 25, my pain began at 20.

I've had even more procedures and drugs and therapies than you have with no results, I used to be active and otherwise healthy and have no family history or reason for my paralyzing pain!

Have you tried any stronger pain killers? I take a ton of oxycodone every day but it's the kind without Tylenol, so it's less harmful on organs and I will gladly become tolerant to oxycodone than lay in agony.

Do you see a Rheumotologist at all? Mine put me on Enbrel and I went from being unable to walk without crutches and needing help just to go to the bathroom to being able to walk without a limp.

Also -- did your MRAs show any labral tears? I had bilateral tears which was thought to be the cause of the pain but after two failed surgeries it's not -- but could be for you.

Now I am looking into Ehlers-Danlos syndrome with yet another specialist (a geneticist) because I have very hypermobile joints. I feel your pain, especially at our age. It may seem like you've tried all the meds but you have just begun, you may able to find a combination that works for you. I personally have been all the meds you listed and they all just felt like placeabos to me...abolutely no help.

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Replies to "I was reading your post assuming you were older and then I got to the point..."

I saw two Rheumatologist Spring-Fall last yr. He was convinced with constant exercise and a proper sleep pattern I would get better. The medications they put me on originally changed me into a whole different person. I was forgetting things more than a 23 year old should it was scary. I had to taper off those medications. It has been a year now and still no answers. I recently tried Neurotin and Celebrex and those did not work but no other pain meds. One of my best friends has Ehlers-Danlos it is awful she has severe shoulder issues and every time she has surgeries they do not help