Connect
← Return to Undiagnosed Hip Pain
Discussion
Bones, Joints & Muscles | Last Active: Mar 25, 2024 | Replies (34)
Comment receiving replies
Hello there. So sorry to hear about your pain, etc. I suffer from something that may indeed be exactly what you have (very rare and little medical info to be found unfortunately)...Google this: Bone Marrow Edema Syndrome (BMES). I've had it in my ankle for two years (extremely rare in ankle, but most often occurring in the hip). A drug called Iloprost (spelling?) is often used to improve blood flow/reduce pain. Find the best Osteo practice in your area and insist on a doc with BMES knowledge/experience. It took me SIX doc's to find one who even knew what it was. Good part is that although it can reoccur, it does go away with time. All the best to you...~Brady
Replies to "Hello there. So sorry to hear about your pain, etc. I suffer from something that may..."
Connect
Hello. I am wondering how you all have fared over time. I was just diagnosed with bone marrow edema in my foot yesterday. I have not suffered nearly the length of time that you both have, but it has been two months of excruciating pain with no relief in sight. This has very much had an impact on my quality of life. I'm in a walking cast now, which takes some of the pressure off of my foot during the day, but the pain is always there. So, at this point I am trying to compartmentalize the pain (ignore it as much as possible) and go on with life as usual, which is hard to say the least. I have a small child, and very much wish I could return to my normal active life. I hope you two are doing better.
All the best,
Angie