@1mepnurse I'm so sorry you have this that's horrible

@1mepnurse I agree with @lioness, that does sound terrible.

Members @deneenm & @glenbard have discussed a similar topic in the past and may be of help.

Below I have linked similar discussions that you may find useful and you may wish to scroll through them.
- Postherpetic Neuralgia (Shingles) nerve damage https://connect.mayoclinic.org/discussion/postherpetic-neuralgia-shingles-nerve-damage-around-eye-eyebrow-forehead-scalp-8/
- Trigeminal Neuralgia* https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/
- Has anyone here had or know about Pudendal Nerve Entrapment? https://connect.mayoclinic.org/discussion/has-anyone-here-had-or-know-about-pudendal-nerve-entrapment/

May I ask how long these symptoms have been going on? Was there a gradual or sudden onset?

Pudendal Nerve Pain Treatment

Has anyone had this condition and gotten help? If so did the pain go away? What kind of Dr did you see and how do they diagnose? Thank you.

@mmoss I'm assuming that you are having this issue and I'm sorry to hear that.

I moved this question to an existing discussion so you could connect with members like @1mepnurse @deneenm & @glenbard

Here are three related discussions I referenced earlier but they seem pertinent to you now.
– Postherpetic Neuralgia (Shingles) nerve damage https://connect.mayoclinic.org/discussion/postherpetic-neuralgia-shingles-nerve-damage-around-eye-eyebrow-forehead-scalp-8/
– Trigeminal Neuralgia* https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/
– Has anyone here had or know about Pudendal Nerve Entrapment? https://connect.mayoclinic.org/discussion/has-anyone-here-had-or-know-about-pudendal-nerve-entrapment/

May I ask what kind of a provider you have seen already?

@mmoss When you mention burning I'm in P.T right now for front thighs that are burning I go today its been a week of exercise he gave me to do at home .I had to ask Dr for referral he wanted to do surgery but therapy is helping me maybe it will help you. For urine smell Are you drinking enough water ?

I have this really bad now after 5 years...have done lots...it is worse ...are you any better and what did you do?????

I had this for 14-1/2 years and sat on a donut. What eventually took it away was anti-seizure medicine that I took for an unrelated condition. Ask your doctor. It worked really quickly too. My PT mentioned that she heard of it working too. Good luck with this monster condition.!

Hi, I just wrote, and it went poof! I am starting over now. Could you please tell me which anti seizure med it is, as I looked and there are so many. Thank u for your response...greatly appreciated!!! This is so hard to live with, glad you found something that works for you! I can not take Gabapentin as it made me feel extremely strange! But I'd there is another ...please let me know exactly which one you take...thanks for your help! This is so debilitating!!!!
Have a nice Holiday!!!

I don't think I have pudendal nerve neuralgia. I have been told that I suffered damage to my pudendal nerve probably during childbirth. In reading articles about the pudendal nerve, I have noticed some things i am familiar with. I was in tremendous pain after my first child was born. Forceps were used. I was told that I tore and I was packed within to stop the bleeding. My second pregnancy was with twins and I felt the sensation that they were going to fall out. Maybe one was pressing on the pudendal nerve? Some of the literature describes inability to achieve orgasm. Most doctors I told took this to mean lack of desire, but it was quite the opposite. Everything else worked up until orgasm. I'm thinking that may have also been caused by the damaged pudendal nerve. My husband became determined to help me overcome this dysfunction by increased effort. THEN I experienced the intense burning pain you describe and could not sleep. What brought me to the doctor years later was not being able to control the sounds of expelling gas and very minor fecal incontinance. I am seeing Dr. Michael Snyder in Houston who is recommending surgery implanting a nerve stimulator. Anybody on here familiar with any of this?

Chronic pain, digestive problems, saddle pain, can't sit long. Leg weakness. What has worked for others?