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Metastatic Lobular Breast Cancer in Stomach

Breast Cancer | Last Active: Dec 22, 2023 | Replies (17)
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@claudiamaria

Six years after initial diagnosis of estrogen positive tubular and lobular breast cancer the lobular has metastasized to my stomach. I am being treated with Anastrozole and Ibrance. Looking to speak to others with the same challenge. Especially interested in knowing anyone who is on Ibrance.

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Replies to "Six years after initial diagnosis of estrogen positive tubular and lobular breast cancer the lobular has..."
Colleen Young, Connect Director | @colleenyoung | Sep 9, 2020

Hi @claudiamaria, welcome to Mayo Clinic Connect. Allow me to bring fellows mets gals into this conversation: @spooz2 @hockeymom25 @elizm @trivia @ja5747 @dianamiracle and others.

While we wait for others to join in, you may be interested in this discussion:
- Ibrance and Liver Lesions https://connect.mayoclinic.org/discussion/ibrance-and-liver-lesions/

Claudia, I can imagine that hearing that the cancer has come back was a shock after 6 years. How long have you been on Ibrance? Any side effects?

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djwc | @djwc | Sep 9, 2020

@claudiamaria so sorry about your new challenge. 12/4/2020 I was diagnosed with metastatic breast cancer in my bones. (Original diagnosis ducal carcinoma-no lymph node involvement-tamoxifen for about 7 years) After MBC diagnosis,
I started IBRANCE & letrozole-January 2020. Tolerating both-my side effects are insomnia & fatigue & arthritis type pain.

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ja5747 | @ja5747 | Sep 23, 2020

Hello @claudiamarie, sorry it has taken me so long to respond. I was diagnosed with stomach mets In June 2018, 5 years after initial lobular cancer diagnosis. At that time, I continued with Arimidex and also started Faslodex which I stayed on for 16 months with stable results, or at least what we thought to be stable - as I’m sure you know, lobular cancer doesn’t show well on imaging, and especially in the stomach so in addition of CT’s to monitor possible activity to other organs, I had a few Endoscopies to monitor. After the 16 months, I was diagnosed with mets to the liver and since then, the stomach has been pushed to the back burner. I stopped Faslodex and started Ibrance and Letrozole.. I tolerated Ibrance pretty well, one new thing that happened was that I would loose all the blood from my fingers quite frequently and had to use heat sources to get it back. All side effects from Armidex subsided after stopping as well. I was only on Ibrance for about 5 months as an MRI at that time revealed extensive liver lesions and we switched to a chemo drug. I’m so sorry for all the challenges you are facing with your stomach. Is there any discussion about surgery to open the gastric outlet, is it even possible? Are there other options to give you some relief? You are in my thoughts!

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