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DiscussionMAC Dr. recommendations Mayo Rochester: What to ask at first appt?
MAC & Bronchiectasis | Last Active: Dec 29, 2022 | Replies (58)Comment receiving replies
Replies to "Just recently diagnosed with MAC at Mayo in West Central Wisconsin and unable to get appointment..."
I also see have been seeing Dr. Moua at Mayo since 2017. I appreciate his knowledge, thoroughness and compassion.
It's really nice to know someone else using Dr Moua. Am wondering if I could get your email address. Would perhaps like to correspond with you from time to time. I started seeing him in 2015. Will be happy to share my address (if it's allowed on this site)????
Sure. Please private message me. Looking forward to connecting!
Has anyone here heard of Dr Thomas at Rochester, Mayo? That’s who I’ve been seeing and feel good about him but have mixed results when trying to communicate through his portal. They seem to have a slower response time than other specialists I see there.
Hi @n4seth, welcome to Mayo Clinic Connect. As @auntnanny mentioned, Mayo Clinic specialists work as teams. No matter which MAC expert you are assigned to, you will have the benefit of a team approach and the collective knowledge of multiple specialists. @windwalker @jkiemen and @jammer can also share about this Mayo approach.
n4seth, How are you feeling? Are you currently taking any medication or therapy for MAC?
@n4seth Is your appt in June at the Mayo?
@n4seth Hi. I take it you live in Wisconsin? I am glad you asked about my role as Mentor for this group. I am one of two volunteer Mentors for our group. @sueinmn is the other one. Our group is so active that it required two of us! Anyhow, our job is to welcome new members and help guide them through using the site. We are patients that have bronchiectasis, and have had active mac ourselves. (I have been mac-free since 2014) You can click on my picture icon and read about my treatment plan. We are here to answer your questions and help you find info and resources. We are NOT medical professionals. We have this disease, and can bring info and support to those who are just starting out on this journey. I think you will find that our members offer helpful info., kindness, and friendship. Some form very close bonds and stay on here years even after they have recovered. Those people are our beacons of hope. Are you currently experiencing symptoms besides fatigue?
I'm a pulmonary patient at Rochester and my doctor is Teng Moua. I don't koow how he is rated at Mayo's but when they assigned me to him, they said he was one of the best. (Of course, they probably say that about all -- and frankly, I think they are all equally qualified. They rather work as a team and they consult with their colleagues on most everything) I think you will be pleased but please write again after you've been there.