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Myelodysplastic Syndrome (MDS): Did you have stem cell transplant?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 27 8:12am | Replies (54)
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@beanglow

I have been diagnosed with early MDS and I'm wondering if anyone else has had petechiae on your ankle, foot, instep, and heel that started out red and turned brown after that. My foot does swell up after being on it for a while and the instep begins to hurt and swell also. There is also a black spot on my instep which my PCP said is a superficial blood clot. I saw my hematologist on Thursday but forgot to ask him about it and of course, the office is closed today. Does anyone have any ides if this will remain this way or if it will eventually dissipate?

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Replies to "I have been diagnosed with early MDS and I'm wondering if anyone else has had petechiae..."
barbie75 | @barbie75 | Sep 28, 2019

I have been diagnosed with PV and an early complaint before having. 2 mild strokes leading to the diagnosis was a right foot problem similar to yours. Three doctors looked at my foot could not diagnose any specific problem and insisted that I just learn to live with it. After the PV diagnosis when I had 2 mild strokes, the hemotogist also claimed that my foot issues had nothing to do with the diagnosis of PV or the strokes. After the strokes, my foot pain and discoloration faded. Now it is back and am concerned about having another stroke.

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