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Myelodysplastic Syndrome (MDS): Did you have stem cell transplant?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 27 8:12am | Replies (54)
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@hklass

I was diagnosed with MDS, specifically Refractory Anemia with Ring Sideroblasts in 2013. I became transfusion dependent 11/2 years ago. Is there anyone out there who is or has been treated with Azacytidine for RARS? Has anyone been treated for iron overload with Deferasirox?

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Replies to "I was diagnosed with MDS, specifically Refractory Anemia with Ring Sideroblasts in 2013. I became transfusion..."
Justin McClanahan, Moderator | @JustinMcClanahan | Mar 12, 2019

Hello @hklass. I would like to invite @dchavian, @nchase, @jaylevel1, @teammeadows, @donnaclabaugh, to this discussion as they have all discussed being diagnosed with MDS, and a few mentioned taking vidaza (Azacitidine) as well.

@hklass, if you don't mind explaining, what is the difference of MDS and MDS with refractory anemia with ring sideroblasts?

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hklass | @hklass | Mar 12, 2019

The myelodysplastic syndromes are grouped into about 6 different categories. The category I’m in is Refractory Anemia with Ring Sideroblasts. Refractory anemia is a condition in which the bone marrow fails to produce sufficient normal red blood cells. Iron molecules, rather than helping the red blood cells to produce hemoglobin which carries oxygen to the cells of the body, simply form a ring around the nucleus of the red blood cells, causing iron overload.

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