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I was diagnosed around 20 years ago. I was only the 7th case my specialist had ever diagnosed. so it was a little rare at that time. I had had symptoms for 10 years or so and had not gone to a specialist. So, now, I have had the symptoms for about 40 years. My doctor said in 2015 that it would burn itself out. It didn't. There was a time when I was so much in pain that I was wishing they would just remove my intestines. lol Sometimes it is still that bad. Do we really need to have to take meds forever for this ?
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Does anyone know how one may acquire CG. This is one of the diagnoses that has been brought up to me as a reason for my loose stools (twelve weeks since finishing a round of Clindimycin). CDiff has tested negative twice. My next option is a colonoscopy. This is all frightening. Was healthy until this happened.
@guthealth - it is an autoimmune disorder I was told.
Hi guys! My name is Julia, i’m 21 years old, and I was diagnosed with collagenous gastritis when i was 15. I was seen by Dr. Stephens at Mayo Clinic in 2016 and was on some medications. Since then, I have kind of been side lined from any medical help. I have been able to manage the pains from it since then, but recently my heartburn has been awful. Everyday after I eat anything I feel like my chest could explode. I was wondering if anyone who also has something similar (i know there’s only a small number of us with CG) has found anything that helps?
Welcome to Mayo Clinic Connect. Heartburn seems like a simple symptom to some, but I know first hand that it can be debilitating when it gets out of control.
You will see that I moved your inquiry to a discussion about collagenous gastritis. I did this so you could connect with members like
@bvanderb, @adri55 and @guthealth who have discussed that diagnosis.
Julia, do you find that there are certain foods that make your heartburn flare more?
Oops deep wet belch not beach . Sorry typo
I to suffer from chronic gastritis which I can't get rid of even on Pantaprazole PPI. Get rid of the fruit and only eat melon, and ripe banana, only drink unsweetened almond milk which is non dairy and alkaline. I had gerd and H Pylori which is now gone. Good luck!
Budesonide always makes me gain weight. I started on it again last week and am experiencing a number of new problems with it. I get really short of breath very easily. I get lightheaded. Lose my balance. Experiencing bone pain. Itching from head to toe. Burning sensation of the skin. I'm also coughing a lot. Have a runny nose. I don't have a cold either.
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I understand what you mean by wanting to get rid of intestines! I was diagnosed 2009, initially treated with methotrexate. Symptoms returned, but a little different. I was sick for about 8 years, prednisone always worked short term , but then symptoms returned. Finally in 2015 I started immunosuppressive medication for several months. So far so good!