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← Return to Video Q&A about Breast Cancer Survivorship: Attaining Renewed Vitality
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Video Q&A about Breast Cancer Survivorship: Attaining Renewed Vitality
Event Date: October 30, 2019 | 12:30pm - 2:15pm CT
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@trixie1313
The neuroendocrine differentiation is unsettling to you, I imagine. If I had such a diagnosis, I think that I would push (hard) for genetic testing to see what I may have inherited that could be playing a part in all this -- for example, certain syndromes like multiple endocrine neoplasia type 1 or 2, Von Hippel-Lindau disease, tuberous schlerosis, or neurofibromatosis. Ruling such things out might bring more confidence going forward with the treatment options offered.
Many of us risk mets at any time, which is frustrating and troubling to both patients and oncologists alike. I wish you blessings and the best outcome on this journey.
Replies to "@trixie1313 The neuroendocrine differentiation is unsettling to you, I imagine. If I had such a diagnosis,..."
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@elizm Thank you but that has already been done. NET ususally presents elsewhere, such as colon or liver, but in rare instances it presents in the breast. It is a wait and watch-type of diagnosis and once located elsewhere is treated with chemo used for lung cancers.