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My 14 year old son had cardiac arrest. He is now 18. With a diagnosis of arvc. No biopsy only imagineing! No progression! He keeps getting shocked but also now has ptsd because of it! His genes also said arvc but has no symptoms of this! We think his anxiety his causing his shocks! So we question this diagnosis? He is seen by the u of m!
Replies to "My 14 year old son had cardiac arrest. He is now 18. With a diagnosis of..."
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Welcome to Connect, @christinestewart.
I’d like to offer some information about arrhythmogenic right ventricular cardiomyopathy (ARVC), but first, I’d like to emphasize that symptoms of ARVC are related to the electrical activity of the heart – this condition affects the electrical signalling in the heart, and often causes arrhythmias and/or what your son may be experiencing as “shocks.”
ARVC is a genetic, progressive heart condition in which the muscle of the right ventricle (and sometimes, left ventricle) is replaced by fat and fibrosis, which causes abnormal heart rhythms; this increases the risk of an abnormal heartbeat (arrhythmia) and sometimes, sudden death.
https://ghr.nlm.nih.gov/condition/arrhythmogenic-right-ventricular-cardiomyopathy
Since it is a progressive condition, it may not cause any symptoms initially, but symptoms can become worse over time, causing some serious complications. It is often difficult to diagnose – there is no single test which can definitively make or exclude the diagnosis. https://www.cardiomyopathy.org/arrhythmogenic-right-ventricular-cardiomyopathy/intro
@christinestewart, could you share few more details? How does your son describe the shocks? Do they occur frequently in a day?