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Video Q&A about Gynecologic Cancers Event Date: May 9, 2019 | 2:30pm - 3:00pm CT

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@odette

The updated version(2019) of the NCCN guidelines for ovarian cancer has changed the recommendations for stage 1A OCCC treatment to "observe" as an option. For many years, the need as well as the efficacy of chemo (carboplatin/taxol) has been questioned for this group of patients not only by international researchers, but in the U.S. as well. They appear to have only added one new study in the references for the 2019 NCCN version with regards to this specific situation. I had very strong reservations about subjecting my body to chemo, yet it was strongly recommended by two of the most reputable institutions treating cancer so I did follow this course. I'm now really concerned about the long term consequences of having had this treatment when it probably wasn't necessary (secondary cancer). I never understood why the NCCN included treatment of ovarian clear cell carcinoma with all of the other types of ovarian cancer as it is not the same disease. At this point, I am wondering why it took this much time to change the recommendation with all of the evidence that existed and to ask for reassurance that I did not allow for irreparable harm to my body by subjecting it to these toxic chemicals.

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Replies to "The updated version(2019) of the NCCN guidelines for ovarian cancer has changed the recommendations for stage..."

Oh! I was diagnosed at 3C three yeats ago,had a hysterectomy and carbo/taxol chemo treatment for 6 months and now just carbo(almost finished) for a recurrent spot. I am exhausted but the spot seems to be disappearing. “Irreparable harm”? Please explain. Will I ever regain the strength I once had? I am being encouraged to exercise. Feel so weak!

@odette
Hi Odette,
Hope You are doing well and this email goes just to you, Odette. Thank you for your informative posts, I enjoy reading them.

I have a question for you. Are you on some type of maintenance therapy since you finished chemo? My gyn suggested me to discuss Avastin therapy with my new gyn in Washington ( it's my primary residence). I left Tucson (snow Bird) soon after finishing my chemo, 6 cycles.

I have Apt with my new Gyn on 13th this month and I will hear what he says about maintenance thrapy. In the mean time, I like to find out what other people are doing for post chemo maintenance. I eat plant based diet mostly, do yoga and Zumba, walking, and playing on my harp.