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Anyone have multiple meningioma brain tumors?

Brain Tumor | Last Active: May 29, 2023 | Replies (148)

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@nancye3

My sister has an appointment at Mayo Clinic July 26th for a 3rd opinion for 3 recently diagnosed meningiomas. Has anyone been a patient of Dr. O'Neill or Dr Meyer at Mayo? She had a meningioma surgically removed in 2001 after a seizure.

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Replies to "My sister has an appointment at Mayo Clinic July 26th for a 3rd opinion for 3..."

Welcome to Connect, @nancye3.

We have a few members in the Connect community who have experience with meningiomas personally or with family members, and I’m guessing it’s likely one of them will know Dr. O’Neill or Dr. Meyer. Please meet @jackieerickson , @07ram, @pegorr , @lindajean, and @pennie . Others who may be able to give you personal information with these doctors are @robinlynn , @audrapopp , @jkenser and @lynda1992.

Meanwhile, you might want to take a look at Dr. Meyer’s Mayo Clinic bio, if you haven’t already, here:http://mayocl.in/2sXrqJp. Dr. O’Neill’s profile is located here: http://mayocl.in/2trNT4Z. I think these will give you lots of good information on their backgrounds, and you can watch a video of Dr. Meyer on his profile, as well.

Did your sister experience any more seizures after her 2001 surgery?

Dr. O'Neill has been my doctor for over 10 years and through his excellent advice has managed my meningioma's without surgery at this point. His advice to stay away from any hormonal therapy when I reached menopause and switching to only organic food along with no soy products ( because all can act like estrogen and "feed" the tumor growth) is what I attribute to my slow growth and the ability to watch and wait since my tumors are left frontal lobe and not causing any other issues. He is a hero to me!!!! A wonderful man who instills well deserved confidence thanks to his skill and kindness.

Hi Nancy and LindaJean,
Thanks for mentioning the possibility of booking a flight through Mayo Clinic that allows you to change flights free of charge should your stay be extended or shortened. You may be interested to know more about Concierge Services at Mayo Clinic. They can help you plan your visit. Read more here:
- Concierge services: Navigating your Mayo Clinic visit https://connect.mayoclinic.org/newsfeed-post/concierge-services-navigating-your-mayo-clinic-visit/

@clockrem12 can help further should you have additional questions.

Sorry I did not see this sooner. My wife was a patient of Dr. Meyer. He is a gifted surgeon and an amazing doctor. IIRC he is the head of the Neuro department now as well as head of the Medical Education at Mayo. None finer in my estimation.

Thanks so much for your reply. My sister is so worried about having any treatment at Mayo when she lives in Atlanta. She is getting conflicting opinions here from neurosurgeons she has seen and wants to go to a major medical center like Mayo for a third opinion. Did your wife have radiation or surgery at Mayo. I hope she is doing well.

I am very worried about the possibility of my sister having surgery at Mayo when she lives in Atlanta. She had complications after her first surgery and had to have surgery twice more due to a hospital induced infection. I have confidence in the Docs at Mayo but she will not have me or any family there to visit and comfort her. Her appointment is with Dr. Burns on August 9th. Dr O'Neill told her one of the tumors on the right had grown 30% in one month. Any feedback would be greatly appreciated.
Thank You,
Nancy