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Replies to "I am 33 years with MUSK positive Myasthenia gravis...have spent years on low-dose prednisone and ultra..."
#MayoClinicNeuroChat Live from American Association of Neurological Surgeons Annual Meeting
Event Date: April 30, 2018 | 2:30pm - 3:00pm CT
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Replies to "I am 33 years with MUSK positive Myasthenia gravis...have spent years on low-dose prednisone and ultra..."
My prayers to Almighy for your recovery and make life tolerable.HE definitely helps.Just wish to know whether you were on Statins for long time earlier to onset of MG ?
Prayers for your recovery.Om Shanti ie Peace to all.
Hi @looking2u4more and @susiejohn
I would appreciate your sharing your experiences with MuSK positive Myasthenia gravis with Connect members in these discussions:
- Myasthenia Gravis* https://connect.mayoclinic.org/discussion/hi-everyone-let-me-begin-by-telling-you-some-of-my-story/
- Myasthenia gravis (MG) https://connect.mayoclinic.org/discussion/myosthenia-gravis/
I am on 2500 mg cellcept and am fortunate I have not experienced your side effects. Often the docs prescribe Immuran when cellcept is not tolerated. Also Ritumab has been successful with MUSK.
Good luck