← Return to Video Q&A about Pituitary Tumors

Event
Video Q&A about Pituitary Tumors Event Date: December 15, 2016 | 1:00pm - 2:00pm ET

Comment receiving replies
@upartist

has the research determined if there is a familial link with pituitary adenomas? I understand there are various kinds. My family has three generations of macro adenomas.

Jump to this post


Replies to "has the research determined if there is a familial link with pituitary adenomas? I understand there..."

Hi,
Thank you for tuning in.
According to MayoClinic.org:
A small percentage of pituitary tumor cases runs in families, but most have no apparent hereditary factor. Still, scientists suspect that genetic alterations play an important role in how pituitary tumors develop. People with a family history of certain hereditary conditions, such as multiple endocrine neoplasia, type I (MEN I), have an increased risk of pituitary tumors. In MEN I, multiple tumors occur in various glands of the endocrine system. Genetic testing is available for this disorder.

You can learn more here: http://www.mayoclinic.org/diseases-conditions/pituitary-tumors/symptoms-causes/dxc-20157631

Hello @toffenbacher, I am intrigued by this topic as this seems to be a type of endocrine tumor - am I right in this assumption? This leads me to my next thought. I've had multiple neuroendocrine tumors (carcinoids) in the duodenal bulb (2003, 2005 and 2016). I've often wondered if the primary site of this tumor is really the duodenal bulb or elsewhere. Has there ever been any studies related to NETs and pituitary tumors? My endocrinologist has suggested the possibility of MEN1 which makes all of this sound familiar. I have several, but not all, of the symptoms. I also have hyperparathyroidism, osteopenia, and several other odd /rate disorders. Any comments on these thoughts?

Hi Teresa, I'm going to jump in and bring @jamimen1 into this conversation. Jami was diagnosed with MEN1 about a year ago and may be able to shed some light. You might also be interested in connecting with @jmbjar about hyperparathyroidism.

Did you ever investigate the possibility of MEN1?

@colleenyoung My endocrinologist and other doctors have mentioned it in passing, but I get the impression that I might not have all of the symptoms (or disorders needed) to look further into that. Thanks for letting me know about others with this situation, after the holidays I'll check with them.