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I'm about to have genetic testing done for myoclonic dystonia and family members health history that could help with diagnosis have all died. Where/how could I legally obtain information on these family members which could help with my diagnosis?
Replies to "I'm about to have genetic testing done for myoclonic dystonia and family members health history that..."
Hello @cbuss,
As you will hear, Mayo Clinic certified genetic counselor Jessica Jackson addressed your question on this Facebook Live broadcast. You can listen in detail, here: http://mayocl.in/2g2KzDs
Please let us know if you have any other questions; we're listening.
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Welcome to Connect, @cbuss; what a great question!
Although I'm not quite sure about where you would be able to obtain this information, I will post it on tomorrow's Facebook Live event where Mayo Clinic certified genetic counselor Jessica Jackson will give a presentation with a virtual discussion to follow, regarding the importance of family history.
I would also encourage you to sign up for this event, which will take place on tomorrow, Nov.18 at 11am ET.
You can sign up here: http://mayocl.in/2eLMqAG
You do not need a Facebook account to be able to watch the broadcast. You will also be able to watch it right here on this page on Connect.
In the meantime, I would like you to meet @Kaia, @netfun2011, @kevinkelley, @shenaaz, and @lo who have talked about various forms of dystonia in the past.
@cbuss, have you been diagnosed with myoclonic dystonia?