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Video Q&A about Amyloidosis – What Patients Need to Know Event Date: June 4, 2015 | 12:00pm - 1:00pm ET
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@mtownsend51

I can't find any doctor near me (Delaware) to treat my amyloidosis lichen type. Johns Hopkins doctor saw me & since I don't have the primary type, he could not treat me. Suggestions?

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Replies to "I can't find any doctor near me (Delaware) to treat my amyloidosis lichen type. Johns Hopkins..."
Pauline C. DeAscanis | @pdeascanis | Jun 7, 2015

Have you tried University of Pennsylvania Hospital? They run clinical trials for some types of amyloidosis. We are also from Delaware, and my husband is on a trial at U Penn for Wild Type Cardiac Amyloidosis. If you haven't tried anyone there, perhaps Dr. Brian Drachman, the cardiologist who runs that clinical trial, will know if they treat your type.<br />
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PCD<br />
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jerrybecker | @jerrybecker | Jun 7, 2015

So Pauline and Mtownsend from Delaware....Delaware here also...getting treated at Chrisitiana for AL...living in Bear....send me private email would be interested in your stories if you would like...jebbecaz@yahoo.com<br />
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