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Video Q&A about Amyloidosis – What Patients Need to Know Event Date: June 4, 2015 | 12:00pm - 1:00pm ET

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@cowboycoffee

I have been diagnosed with Lychen Amlyoidosis. No one here knows anything about it. So this is all I know also. My skin looks like alligator skin and is very itchy. The dermatologist gave me Soriatne but nothing has changed. Where do I go, What do I do next?

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Replies to "I have been diagnosed with Lychen Amlyoidosis. No one here knows anything about it. So this..."

This is not a systemic form of amyloid in that it does not involve other organs. We will check with our dermatologists regarding treatment options.

As far as lichen amyloidosis, we could assist, but it isn’t something we have as a specialty clinic or strong web presence on.

hello, my wife have amyloidosis in the heart, you take egcg and that disrupt fibrills amyloids . Com on to facebook amyloidosis international, i give you the good information. 8 months ago doctors want transplant the heart from my wife from 32 years, im living in belgium and give information. We dont change heart, take egcg and other natural things, that work really.<br />
Best regards <br />
Philippe<br />
<br />
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