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Description
In this webinar, cardiologist Martha Grogan, MD, and hematologist Prashant Kapoor, MD, provide an overview of amyloidosis, including tests and evaluations, treatment options and how to manage your symptoms. A question and answer session followed the presentation.
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I have Familial Amy Serine84Ilene
I have denied entrance into 2 clinical trials because I have not progress enough....thoughts on the Right to Try laws.....
My diagnosis, AL Amyloidosis with cardiac involvement, GI tract and peripheral/autonomic nervous system, My most problematic symptom is Chronic diarhea, Can you speak to any new developments in treating chronic diarhea? Will I improve over time?
I received a SCT in January of 2013 and was in CR until now. Recently my lambda was 28.4 mg/dL and was confirmed with a second blood test. Kappa was 2.84 mg/dL and ratio was .10. A bone marrow biopsy was done which showed no activity and was normal. Is it possible that I have relapsed and it not be in the bone marrow? What does this mean?
The webinar started at noon CST; it's live now.
Yes, the webinar is mobile optimized.
Not sure who is monitoring comments but an observation, All look good and slides and audio coming through perfectly
Will this presentation be available for viewing at later time?
As well as the posted questions?
For the trial options, can they be tried no matter your age?
Hello Rick - yes the presentation will be available post webinar on the Connect platform and and also on YouTube. Questions that the physicians are unable to get to during the webinar will be answered and reply posted after.
Where will the responses to the questions not answered during the webinar be posted? How can we access them?