My granddaughter has an optic pathway tumor on the chiasm and in the hypothalamus. She has the Suprellin implant for precocious puberty and she has IGF1 excess. Sandostatin has not stopped her growth. We are going to try somavert , when we get an insurance over-ride to pay for it. Do you have any suggestions? She is also on avastin/ irinotecan therapy right now.