Dr. Weroha: participating in clinical trials DOES cost patients $$. Insurance doesn’t pay for the trial drug, true, but it may have to pay for the administration of it – even if it’s not SOC. And so patients end up paying the copay for the admin. of the drug. I paid over $110 every 3 weeks for the admin. of Avastin for a trial, plus $30 for each checkup required every 6 weeks, plus parking fees and gas etc., for 22 cycles! My mother participated in a trial at NIH and although they arranged her plane flights, they didn’t provide a place to stay, when she had to be near Bethesda, MD for about 3 days every month. Hotels in the area start at $200/night!