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Where there's a Winney, there's a way: Meet @rwinney Oct 24, 2021 | By Teresa, Volunteer Mentor (@hopeful33250)Comment receiving replies
@rwinney
First I just want to say what a lovely lady you are. I also admire your outlook and determination to educate yourself and not give in to your various health conditions, atta girl.
I love bread too. I use to make all kinds. Candy however is my downfall and you haven’t tasted good bread until you have filled it with chocolate and caramel. Give it a try sometime you’ll never go back to plain old ordinary every day bread, I assure you.
I know how horrendous the pain of neuropathy is however never lose hope. I had my neuropathy for approximately 30 years or so. At times I could barely walk. However one day all the various types of pain started getting much much better. In fact it all went away with the exception of the numbness. The numbness does cause me to occasionally fall down because I can’t really feel where my feet are and I end up tripping myself but I am very well acquainted with the ground from all my seizures so I don’t really mind. I’m sorry you were refused help at Mayo Cinic. I wish I understood the criteria used to decide to treat and who not to. It’s a shame they can’t see everyone however I too believe Mayo is the best of the best. I’d like to thank you for being part of connect. You have helped a great many people including myself and for that I thank you.
I hope all your maladies improve or better yet get cured. Fingers crossed the Mayo will except you soon.
Health & happiness,
Jake
Replies to "@rwinney First I just want to say what a lovely lady you are. I also admire..."
Hello Jake, I am Sunnyflower. I haven't seen you here before. I think I joined last Spring, but wasn't active until last August?? My memory is shot, a lot b/c of Gabapentin. Wow you've really been through it!!!!! I can't believe what you suffered but the miracle that your pain got much better is just amazing! I'm so happy for you!!! It sounds like the numbness that caused or causes you to occasionally fall down, sounds a lot like propioception to me. My Neurologist told me I have that myself! I didn't even know it, but was explaining my balance problems and she said that when she used the tunning fork on my that I didn't feel it on my lower legs and feet! Why don't they tell us these things when they do them in the office I wonder? It's like when they take your blood pressure of any other vital signs, I find I have to ask them what the readings were b/c they certainlyy won't offer it! Take good care and warmest regards, Sunnyflower @rwinney
Connect
Well, hello! @jakedduck1 I appreciate you writing and thank you for such kind words. I admire you too Jake. I know, you sir, have been through it. And I'm so happy that your neuropathy pain subsided. The numbness however, is no joke. 🙁
Bread...Lol! Cant help myself, so much of my diet revolves around bread. Not too sure about adding more sugar to it though but, go for what you know!!
I've actually been accepted to the Mayo Rehabilitation Center. I begin the program tomorrow. I'm super excited to let them have at me!
Be well,
Rachel