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Immunosuppression: Watching For and Managing Side Effects Jul 1 10:34am | By Kristin Eggebraaten (@keggebraaten)Comment receiving replies
I can notoriously be concentrating on something so hard that I lose track of time and look up finding that I am well past half an hour late with my antirejection, meds. I've learned to put insistent reminders in place by utilizing a phone app which audibly signals the time to take meds and records my doing so when I check them off as taken. This has been so valuable to forgetful, distracted me! I also set a back up reminder with a phone alarm that goes off half an hour after the appointed med-taking time. Together, with these, I manage well. Otherwise, on my own, I'd be a disaster. Part of this is advanced age, but the other part is just plain old individual nature.
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I am surprised. One of the side effects is loss of concentration, Micophenolate and mood swings, prednisone
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@silverwoman. I don’t know what I would do without my watch to remind me. Before I had this watch I used my phone but this works better for me. I’m on sirolimus so only take it once a day. My watch vibrates on my wrist to wake me. I get up, take my pills, and try to get another hour of sleep so I can eat when I get up. I like that it doesn’t wake my husband too.
They tell you to take these with or without food but to be consistent. At some point it dawned on me that maybe if I took them without food I could take a lower dose so I spoke to my transplant team and they had me get tested and I was able To go from 4mg a day to 2.5. I just figure the less medicine, the better.
JK