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@roch

Being a lifelong resident of Rochester and Mayo patient since birth, I have participated in many clinical trials including samples for biobanks. I have found that the study coordinators have been extremely helpful in explaining the studies and my options. And like Brianne Hamann says at end of her article, you can decline or withdraw from a study at any time.

After my diagnosis of breast cancer, I was asked to participate in many new studies. Everything from testing new ultrasound devices to evaluating current medications used in treatment of cancer.

Only negative part was I received calls about clinic trials only days after receiving the diagnosis. I was dealing with multiple decision and to have the clinical studies added to mix was somewhat overwhelming.

Even though some of the research does not benefit me today, I hope that participating may help future generations.

Laurie

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Replies to "Being a lifelong resident of Rochester and Mayo patient since birth, I have participated in many..."

Hi Laurie. I hope you are in complete remission with your breast cancer. Thank you for participating in clinical trials. Yes, you may not benefit now but future cancer patients will be exposed to new drugs and new techniques because of you. You may be saving some lives! Although I live half way across the globe from Rochester, I participate in clinicals by shipping blood samples to Mayo every month. I am in remission from late stage ovarian cancer. And, I love your dog!