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What to Expect as a Transplant Caregiver May 31 10:34pm | By Kristin Eggebraaten (@keggebraaten)Comment receiving replies
@actsoflight What feelings do you experience as you come to this realization that your friend may not be a viable candidate for heart procedures like a transplant? Sadness, anger, pity, frustration, some or all of these plus more? How will your friend respond to you when you tell him how you feel? You have reached out, spending a fair amount of time searching for information and you deserve kudos for that. Remember, even though your situation has not turned out favorably, those questions you have asked have helped others who are in a similar spot.
Ginger
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I feel anger and resentment. I've gone to doctor's appointments with him and at least 2 of those times I've heard him successfully deceive the medical staff about issues that were very important for them to know.
His primary care cardiologist has his hands full with him on many levels. He's extremely impatient and 'plays' at being grateful. He's got lots of internal rage that is sometimes released, passively or aggressively, on those who don't deserved it. I've attempted to tell him to seek counseling as did one of his doctors. I went with him the one and only time he went. He never went back and wouldn't discuss the issue any further.
He's yet to thank me or show gratitude for any of my efforts. I even sent him 2 emails a asking him if he's participated in any way with Mayo Clinic's Connect. I haven't heard a word back. Knowing him as well as I do I believe he expects me to say I'll be his primary caregiver and go flying down there to handle everything for him.