← Return to What to Expect as a Transplant Caregiver

Newsfeed Post
Comment receiving replies
@fatherscaregiver

@actsoflight, I am my dad's primary care giver. I only lived about 5 miles from him when we received his transplant. We had help from close friends and family initially. If I remember correctly my dad was in the hospital for about a week after his transplant. My aunt (lives out of town) came to stay with my dad for the first two weeks after discharge. She was able to go the hospital with me to review all the discharge, post op care with me. Close friends (also live out of town) stayed the following two weeks. My sister (lives out of town) stayed for the fifth week. During this period I was at my dad's house daily, taking care of meds, groceries, cleaning, doctors appointments, etc. My son (20 years old at the time) moved in with my dad after my sister left. This provided that somebody would be with him almost all of the time. My son eventually moved out after two years and my dad lived by himself for two years. My dad was older when he received his transplant and his care has been extensive. He was just diagnosed with Parkinson's however the symptoms started to appear not long after transplant. This significantly delayed his recovering and took several years and doctors to finally diagnose. His transplant was/is a success, unfortunately other problems, illness can occur. My husband, son and I have adjusted our lives significantly to care for him over the past four years. I saw him pretty much everyday and definitely spoke to him daily. This summer we had to move him to an assisted living facility. His Parkinson's continues to progress and his falls were becoming too frequent.
Everybody recovers differently. For my dad there was never really a full recovery but that is because of additional health problems that were not anticipated. Is there are additional friends and family that can help, take a week or two each? It is difficult to say your friend will only need you 6-8 weeks, 6 months or possibly longer.

Jump to this post


Replies to "@actsoflight, I am my dad's primary care giver. I only lived about 5 miles from him..."

Thus far, he has no support. I live in NY (Manhattan) and he lives in southern Mississippi. So, I'm of no use except for the research I've been doing. In fact, I found out just last night that his insurance only allows heart transplants 'in network' and the closest hospital to him is in the state of Alabama in Birmingham (3.52 hours away from where he lives). My friend had no idea until I told him this last night. From everything that I've been reading, a heart transplant patient should have at least 2 caregivers.........a main caregiver with a rotation caregiver for when the main caregiver needs to leave for what ever reason. I'm thinking now that he probably will need 3 caregivers standing by just in case and all 3 need to completely commit to this endeavor.